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Our mission is to enhance the quality of life of those. Impacted by ectodermal dysplasias through education. While serving as a national. Every individual has his own story to tell. Mine is simply engraved on my skin. Latest CEDSA News and Announcements. Tips, Success Stories and Inspiration.
Upcoming events on rare diseases. The Geneskin website is built around an on-line database dedicated to rare genetic diseases of the skin. Its aim is to disseminate knowledge about these disorders and to improve their diagnosis, treatment and care. A free-access area is available to patients, their relatives and the general public. A restricted access area is provided for professionals giving additional information on the diseases.
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Ectodermal Dysplasias - ist eine Gruppe vererbter Stoerungen der Abkoemmlinge des ektodermalen Gewebes, speziell der Zaehne. Path erbliche Entwicklungsstoerungen aller oder nur einzelner aus dem Ektoderm entwickelnder Organe; Fehlbildu.
Ektoise have spent years crafting peculiar sonic delights, blending organic and synthetic sounds into a colourful patchwork that includes bits of Rock, Electronica, Ambient, Shoegaze, Drone, Psychedelia, Metal, Noise and Jazz to create a sound that is utterly unique.